Nate Update

Quick update--last time I wrote about Nate's potassium issues, we had had a high but normal reading (5.6). Well, we had it checked this past Saturday and it was really high again, as high as it was when we had to have the EKG (6.4).

We went back to the hospital on Tuesday and they took blood and urine at about the same time to compare levels. Levels in his blood were high but not as high (5.9) and it turns out that he has low potassium in his urine, which means his kidneys aren't getting rid of it like they should and it's staying in his blood instead. So it looks like we have at least narrowed it down to a problem with his kidneys, although why this is happening is still a mystery.

The kidney people at Children's Hospital are concerned but not overly alarmed, so the plan is to go back on the medication and check his levels weekly for a month. If they stay relatively normal or possibly even drop off, we will relax a little. If they get high again, we will start seeing the kidney team at Children's.

Poor Nate, he has been to Children's Hospital about 12-15 times in the last 6 weeks, had about 10 blood draws, 3 urine tests, an upper GI and kidney ultrasound. I really hope this just fades away, I'll keep updating here about this as we get through this month.